【本報訊】祝小朋友快高長大,對於蕭曉進的父母來說,或是一個無法達成的祝福。6歲的進進患有罕見病──黏多醣症第四A型(莫奎歐氏症),導致全身骨骼和關節異常發展,除身形永遠停留在兩歲外,日常生活也無法自理。外國近年研究一種新藥可治此病,無奈非常昂貴,一年藥費以百萬元計,進進的家人希望醫管局及早將新藥納入藥物名冊及提供資助,否則只能眼睜睜看着進進身體漸漸衰退。
蘋果日報:
即like蘋果fb:
iPhone App:
Android App:
蘋果日報:
即like蘋果fb:
iPhone App:
Android App:
- Category
- Hiburan - Entertainment
Sign in or sign up to post comments.
Be the first to comment
Up Next
Autoplay
-
The Dance Company jadi Duta CD Original
by admin 388 Views -
Keharmonisan Keluarga Wendy
by admin 405 Views -
【長不大的身軀】黏多醣過多惹禍
by admin 110 Views -
Momo bercerita tentang persiapan Album Ke 3 Geisha
by admin 398 Views -
Artika Sari Devi Selalu Dukung Suami
by admin 328 Views -
人大落閘日 8.31啟動佔中
by admin 151 Views -
Chris Pine mengemudi dalam keadaan mabuk
by admin 381 Views -
EXO, Siwon dan Kom Hee Sun menghadiri konser amal Jackie Chan
by admin 505 Views -
Latihan pementasan Wayang Orang
by admin 363 Views -
酒店女扮學生妹 引正放蛇警
by admin 173 Views -
PSA: What You Wish to Do in a Hot & Hazy Situation
by admin 191 Views -
Vega Darwanti Ceria Tentang Ulang Tahun ke 28
by admin 398 Views -
Katy Perry dan One Direction kampanye melawan kemiskinan
by admin 312 Views -
Fadly Musikimia menggarap sebuah project yang diberi nama King Of Fire
by admin 309 Views -
為用車吵架 毒男通渠水淋弟
by admin 112 Views -
Konser Iwan Fals Jakarta
by admin 492 Views -
Pengalaman Marathon Melanie Putria di Tokyo
by admin 627 Views -
Kekompakan Band Vierratale
by admin 348 Views -
Kim Kardashian mengalami kecelakaan kecil
by admin 367 Views -
Jessica Simpson kembali ke dunia Entertainment
by admin 351 Views -
Adam Sandler dan Drew Barrymore Star Of The Year
by admin 358 Views -
ColdPlay mengguncang iTunes Festival di Amerika Serikat
by admin 310 Views
Add to playlist
Sorry, only registred users can create playlists.