【本報訊】患結節性硬化症的36歲池燕蘭,等不到醫管局將藥物納入藥物名冊已死亡。現時結節性硬化症病人要患腦內巨細胞星型細胞瘤,才獲醫管局處方藥物,但須自費買,今年7月起才可向撒瑪利亞基金申請資助。有病人組織批評,患該細胞瘤病人「萬中無一」,但逾90%病人腎臟有腫瘤;用藥限制多及缺政府資助,很多病人有藥無錢食。
記者︰陳沛冰
蘋果日報 :
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記者︰陳沛冰
蘋果日報 :
即 like 蘋果 fb :
iPhone App :
Android App :
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