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【本報訊】脊髓肌肉萎縮症（SMA）是一種遺傳病，會破壞患者控制隨意肌肉的神經細胞，致肌肉逐漸退化，大腦認知則不受影響，至今未有根治之法。美國去年底推出新藥SPINRAZA，曾接受測試者都指成效顯著，惟首年藥費高達600萬元，隨後每年仍要300萬元，一般家庭難以負擔，脊髓肌肉萎縮症慈善基金冀政府未來將新藥納入醫管局藥物名冊。
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