【本報訊】脊髓肌肉萎縮症(SMA)是一種遺傳病,會破壞患者控制隨意肌肉的神經細胞,致肌肉逐漸退化,大腦認知則不受影響,至今未有根治之法。美國去年底推出新藥SPINRAZA,曾接受測試者都指成效顯著,惟首年藥費高達600萬元,隨後每年仍要300萬元,一般家庭難以負擔,脊髓肌肉萎縮症慈善基金冀政府未來將新藥納入醫管局藥物名冊。
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